E-patients With Chronic Conditions--Susannah Fox
Sometimes my research becomes a little too much for me to bear alone. Like when I find that people living with chronic disease and disability are among the least likely to have access to the internet,...
View ArticleParticipation Matters--Susannah Fox
In politics and in health care, participation matters as much as access. The passion we saw in the political campaigns last year is matched by the passion we see when someone is trying to save a life,...
View ArticleAccess is (almost) everything--Susannah Fox
Or: Why health geeks should pay attention to internet access geeks. The Pew Research Center’s Hispanic Project and Internet Project just released an in-depth look at internet penetration across racial...
View ArticleWhat people living with disability can teach us--Susannah Fox
The Pew Internet Project recently issued a short report noting that people living with disability are less likely than other adults in the U.S. to use the internet: 54%, compared with 81%. The first...
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The internet’s downsides: tell us your stories--Susannah Fox
This is a request for help finding people who have had bad experiences with online health resources. Let me first say that the internet is often a positive force in people’s lives. My own...
View ArticleParticipation Matters
In politics and in health care, participation matters as much as access. The passion we saw in the political campaigns last year is matched by the passion we see when someone is trying to save a life,...
View ArticleAccess is (almost) everything
Or: Why health geeks should pay attention to internet access geeks. The Pew Research Center’s Hispanic Project and Internet Project just released an in-depth look at internet penetration across racial...
View ArticleWhat people living with disability can teach us
The Pew Internet Project recently issued a short report noting that people living with disability are less likely than other adults in the U.S. to use the internet: 54%, compared with 81%. The first...
View ArticleClik here to view.
The internet’s downsides: tell us your stories
This is a request for help finding people who have had bad experiences with online health resources. Let me first say that the internet is often a positive force in people’s lives. My own...
View ArticleClik here to view.
“When someone else speaks for you, you lose”: patient empowerment as a civil...
Here’s something I’ve never done: I’m capturing a comment from this blog five years ago and making it a post of its own, so it’s easier to find, because I think this is going to be more and more of an...
View ArticleCrohnology Blog: Am I disabled?
The series of blog posts at the online community website Crohnology continues for patients with IBD. Duncan Cross has a post that is interesting for anyone with an autoimmune or other disabling chronic...
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